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CureDuchenne Cares Workshop - Tampa, FL

Please select your registration type (family/caregiver or sponsor) and register all adults/children who plan to attend the workshop. Childcare registration available on confirmation page.

About the Workshop:

Featured Speaker:

Barry Byrne, MD, PhD. Associate Chair of Pediatrics and Director of the Powell Gene Therapy Center, University of Florida Gainsville.

Join us for insightful presentations on: 

Standards of Care

Up-to-date care and disease management guidelines across relevant medical disciplines.  

Research and clinical trials

Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies.  

Mental health and family support

Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis.  

Physical Therapy and medical equipment

Stretching techniques and instruction by a CureDuchenne Certified Physical Therapist®. Information on equipment and insurance from a local Durable Medical Equipment vendor 

Details

01/18/2020 08:00 AM - 04:00 PM
Tampa Marriott Water Street
700 S Florida Ave
TampaFL 33602 USA

 

 

 

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